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    • NEXT STEPS AFTER A FAILED HEARING SCREENING
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  • AGES AND STAGES
    • BIRTH TO AGE 3
      • FACTS ABOUT HEARING LOSS & HEARING LEVELS
      • TYPES OF HEARING TESTS
      • AUDIOGRAM
      • EARLY INTERVENTION
      • MUSIC ENRICHMENT FOR BIRTH TO AGE 3
    • PRE-K TO 2ND GRADE
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      • MUSIC TO MY EARS – MTME
        • MUSIC CLASSES & INSTRUMENT SCHOLARSHIP
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        • INDIVIDUAL & GROUP INSTRUMENT CLASSES (AGE 4 -12)
        • MUSIC ENRICHMENT FOR BIRTH TO AGE 3
        • SCHOOL BASED MUSIC PROGRAMS
      • EARLY CHILDHOOD VIDEOS
      • MUSIC THERAPY
    • EDUCATIONAL PROGRAMMING
      • AGES AND STAGES
      • LITERACY
      • HART FAMILY EDUCATION COORDINATOR
    • CLINICAL & COMMUNITY OUTREACH
      • NEXT STEPS AFTER A FAILED NEWBORN HEARING SCREENING
      • FREE FAMILY EVENTS
      • DR. NANCY YOUNG, MD
      • LOANER HEARING AID PROGRAM
      • POLICY AND ADVOCACY
  • MUSIC TO MY EARS – MTME
    • MUSIC CLASSES & INSTRUMENT SCHOLARSHIP PROGRAM
    • EARLY CHILDHOOD MUSIC ENRICHMENT PROGRAMS (UP TO AGE 4)
    • INDIVIDUAL & GROUP INSTRUMENT CLASSES (AGE 4 -12)
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  • AGES AND STAGES
    • BIRTH TO AGE 3
      • FACTS ABOUT HEARING LOSS & HEARING LEVELS
      • TYPES OF HEARING TESTS
      • AUDIOGRAM
      • EARLY INTERVENTION
      • MUSIC ENRICHMENT FOR BIRTH TO AGE 3
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      • MUSIC TO MY EARS – MTME
        • MUSIC CLASSES & INSTRUMENT SCHOLARSHIP
        • EARLY CHILDHOOD MUSIC ENRICHMENT PROGRAMS (UP TO AGE 4)
        • INDIVIDUAL & GROUP INSTRUMENT CLASSES (AGE 4 -12)
        • MUSIC ENRICHMENT FOR BIRTH TO AGE 3
        • SCHOOL BASED MUSIC PROGRAMS
      • EARLY CHILDHOOD VIDEOS
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      • AGES AND STAGES
      • LITERACY
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      • NEXT STEPS AFTER A FAILED NEWBORN HEARING SCREENING
      • FREE FAMILY EVENTS
      • DR. NANCY YOUNG, MD
      • LOANER HEARING AID PROGRAM
      • POLICY AND ADVOCACY
  • MUSIC TO MY EARS – MTME
    • MUSIC CLASSES & INSTRUMENT SCHOLARSHIP PROGRAM
    • EARLY CHILDHOOD MUSIC ENRICHMENT PROGRAMS (UP TO AGE 4)
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LEARN ABOUT OUR ANNUAL APPEAL

NEXT STEPS AFTER A FAILED NEWBORN HEARING SCREENING

1-3-6 AWARENESS CAMPAIGN

Having a baby is a wonderful event in a person’s life and many things are happening right after the baby is born.  One key test that happens the day after your baby is born in Illinois is the Newborn Hearing Screening.  A hearing technician will come and take the baby for a painless hearing test to determine if the child potentially has hearing loss, however failing this test does not determine hearing loss, it merely says more in-depth testing is needed.  This means they need to be tested again to determine if the hearing loss is something that is temporary or permanent.  In fact, close to 90% of all babies who fail their Newborn Hearing Screening will in fact pass when they are re-tested. However, for the other 10% not passing could mean your baby has some level of hearing loss. 
The second follow up screening is crucial to determine if your baby has hearing loss.  

Babies come into this world and are immediately learning to communicate through their senses.  Hearing plays a key role in their interaction with their new world. If a baby fails their hearing screening, it can be scary for new parents. FHSR has partnered with Illinois Early Hearing Detection & Intervention to help you understand the process and what to expect in the first 6 months of your baby’s life, if they have any hearing loss. 
The Foundation for Hearing and Speech Resources strongly believes that an educated parent or caregiver is in the best position to support their baby on their hearing journey.  

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Following the initial failed hearing screening at the hospital, it’s important for moms to ask for a Cytomegalovirus (CMV) screening test. CMV is actually the leading cause of permanent hearing loss and developmental disabilities. Children who have congenital CMV may actually benefit from an antiviral that must be given shortly after birth – so timing is everything. 

FHSR End Quotes Small

UNDERSTANDING NEXT STEPS FOR FAILED HEARING SCREENINGS

SCREEN NO LATER THAN
1 MONTH

All newborns should receive a hearing screening before 1 month of age.
LEARN MORE

DIAGNOSE NO LATER THAN
3 MONTHS

All infants who are possibly deaf or hard of hearing should have a complete hearing evaluation by 3 months of age.
LEARN MORE

EARLY INTERVENTION NO LATER THAN 6 MONTHS

All infants identified as deaf or hard of hearing should receive a critical services before 6 months of age.
LEARN MORE

1 MONTH

If your baby fails their newborn hearing screening it is important to locate a pediatric audiology clinic close to your home so you can schedule the follow up screening as soon as possible. (map).  Clinics can take a few weeks to a few months for appointments, so the sooner you act the sooner you will be able to get the second test. 
Illinois Early Detection and Intervention – Next Steps, can be found HERE.

Once your appointment day arrives it is nice to know what to expect. 
A second follow up screening is conducted, but does not ultimately determine if there is a hearing loss. If a child continues to fail the screening, the baby will receive a diagnostic Auditory Brainstem Response (ABR) test at the clinic. This is a diagnostic test administered by a pediatric audiologist who has the training and proper equipment to perform the evaluation. The test can only be administered if the baby is still and quiet, so scheduling during sleep and nap time is the best time.  Don’t forget to test both ears even if one side passed!  

If the hearing loss is confirmed, you and your pediatric audiologist will need to start making a plan for next steps. They will most likely show you an Audiogram to describe the hearing loss level.  This information will help you determine your path forward.

3 MONTH

Once your baby’s hearing loss has been confirmed, you will need to see a Pediatric ENT – Ears, Nose and Throat Doctor so they can examine the baby’s ears and look for any physical issues that should be addressed.  If an assistive hearing aid device is required for your child’s hearing loss you will see your pediatric audiologist will fit your baby with hearing aids at this time.  Hearing aids amplify sounds and are programmed specifically for your baby’s hearing.   For more information on types of hearing loss CLICK HERE.

In these next few months there will be numerous appointments with your pediatric Audiologist to make sure the hearing aids are programmed properly or to continue the assessment process for cochlear implants.  In addition, hearing molds are used to hold the hearing aids in the baby’s ears, since babies grow so fast in the early stages these will need to be refitted quite frequently in the beginning.
While it is a busy time with appointments, it is also the time to get your baby enrolled in Early Intervention with the goal of having their hearing team and plan in place by the baby’s 6-month birthday.  Early Intervention is a service program provided by the State of Illinois for all babies born who need therapeutic services.  The pediatric audiologist should refer you to the Early Intervention service coordinator who will schedule an intake session.  The beauty of Early Intervention is that all service providers will come to the baby, either in your home or their daycare setting.  And the services are on a sliding fee scale, so you only pay what you are able after insurance coverage. 

For potential CI candidates, there’s a multitude of factors at play for how long the process takes. Hearing aid use, patient participation and enrollment in therapy are important factors in addition to insurance eligibility during the evaluation process. 

6 MONTH

The Illinois Early Intervention Program (EI) for children with hearing loss starts at birth and ends when your child turns 3.  It is very important to enroll your child as quickly as possible to take full advantage of the services the State of Illinois provides. EI services are provided on a sliding fee scale, based on your families income and insurance.    

For your baby’s initial evaluation, the EI service coordinator will most likely send a Speech Language Pathologist (SLP), a Developmental Therapist (DT-H), a Physical Therapist (PT) and an Occupational Therapist (OT) who will each conduct their own tests with the baby to determine if their services are required.  Minimally you will have a Speech Language Pathologist (SLP) who specializes in language acquisition and also may have a Developmental Therapist – Hearing (DT-H) who works specifically with children who have hearing loss.  Your EI service coordinator will work to schedule follow up with any additional evaluations your child may need and will create the Family Service Plan (FSP) based on the outcomes of these evaluations.

By participating in Early Intervention your child will will have a team to support them to create a path for lifetime success.  Your EI service team will help your child with their social, emotional, cognitive, and behavioral development ultimately assisting them with being ready for Preschool or Kindergarten. 

At 3 years of age, your child will transition into Pre-K, where services may be provided by your school.  The EI service coordinator will work with your school to coordinate the transfer of service plan. 

FIND PEDIATRIC
AUDIOLOGY CLINIC

If your baby failed the newborn hearing screening, it’s important to schedule their followup hearing screening at a pediatric audiology clinic.
We have compiled a list of clinics that provide this service as well as additional audiology services your baby may need.

In addition, you may find these sites helpful:

Are you looking for a pediatric audiologist?  Start Here

Are you looking to enroll in early intervention?  Start Here

If my baby has hearing loss, what happens next?

Studies show that babies who are deaf or hard of hearing have the best chance for language development when interventions begin by 6 months of age. The more language-rich environment your child is exposed to at home, daycare or out in the community, the easier they will develop their own language skills.

Creating a team that brings your pediatrician together with an audiologist and a pediatric otolaryngologist (a specialist focused on the inner workings of the ear) is the best way to build your child’s hearing journey. Working together, these providers will measure your child’s hearing abilities and recommend interventions, therapies and resources.

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ages and stages music enrichment birth to 3

Remember that hearing differences do not make your child less healthy than others.
Know that with timely intervention and support at home and school, you can build a healthy hearing journey for your child’s learning and development.

PARENT RESOURCES & ORGANIZATIONS

AG BELL BOX

ALEXANDER GRAHAM BELL ASSOCIATION FOR THE DEAF AND HARD OF HEARING (AGBell)

ALEXANDER GRAHAM BELL ASSOCIATION FOR THE DEAF AND HARD OF

HEARING (AGBell) is another organization designed to support families of children and adults who are deaf. AGBell works as a resource, support network, and advocate for listening, learning, talking and living independently with hearing loss. Through publications, events, outreach, training, scholarships and financial aid, AG Bell promotes the use of spoken language and hearing technology. For more information, you can email them at info@agbell or visit the website: http://agbell.org/.

blank white speech bubble icon isolated on white background

GUIDE BY YOUR SIDE

GUIDE BY YOUR SIDE, a program of IL Hands & Voices, offers parent-to-parent emotional support statewide. Parents of children who are deaf and hard of hearing have been trained to provide unbiased support and resources, and to mentor other parents whose children have been identified as having a hearing loss. To request free support from a trained Parent Guide, please call 224-343-1873 or email [email protected].

blank white speech bubble icon isolated on white background

ILLINOIS HANDS AND VOICES (IL H&V)

ILLINOIS HANDS AND VOICES (IL H&V) is a statewide parent organization for families of children with hearing loss. Illinois Hands & Voices provides families with resources, networking opportunities, and information regardless of the communication mode they have chosen. Ongoing parent-to-parent dialogue is a highly desirable and effective support provided through IL H&V. www.ilhandsandvoices.org.

CHS-YHC Square Organization

CHOICES FOR PARENTS

CHS Youth and Family Connections (YFC), is a statewide coalition of parents and professionals that provide information, resources, advocacy and support to parents whose children have a hearing loss. YFC supports families from diagnosis through early intervention, school placement and transitions – assisting families when needed. Services are offered at home, in school, and in the community.  CHS offers a free Connections Resource Notebook for information on a range of topics connected to deafness including audiology, early intervention, education, literacy, communication, and Deaf culture.
Visit www.chicagohearingsociety.org for more information.

EHDI Pals Square

EHDI PALS

EDHI – Early Hearing Detection & Intervention – PALS – Pediatric Audiology Links to Services

EHDI-PALS; EHDI PALS WEBSITE is a web-based searchable national directory which can be used to help families, healthcare professionals, and state public health organizations to find pediatric audiology expertise for children ages birth to five.

This website provides information about childhood hearing to support families and professionals through the process of screening, diagnosis, and intervention.

UIC DSCC Square

The University of Illinois Chicago’s Division of Specialized Care for Children

The University of Illinois Chicago’s Division of Specialized Care for Children

UIC Division of Specialized Care for Children – partners with Illinois families and communities to help children and youth with special healthcare needs connect to services and resources.
They  are one of the first organizations to provide social workers who will come  your home to  help you navigate your life with a  child who has hearing loss.
https://dscc.uic.edu/

blank white speech bubble icon isolated on white background

JOHN TRACY CLINIC

The JOHN TRACY CLINIC also offers free Correspondence Courses for parents of deaf and hard of hearing babies and preschoolers, as well as for parents of young deaf-blind children.

These classes are available by mail and e-mail through John Tracy Clinic’s Correspondence Program. Building a language-rich environment, auditory learning, and speech and child development are some of the topics covered. More information is available at: www.jtc.org.

IL EHDI Squares

Illinois EHDI

Illinois Department of Public Health – Early Hearing Detection and Intervention

As part of the Newborn Hearing Screening legislation, Early Hearing Detection & Intervention was created to provide services through Early Intervention to babies born in Illinois who have hearing loss up to the age of 3.  The goal is to support the baby with therapeutic services in the home or daycare setting to reduce any development delays and assist the child in being ready to enter preschool.  

Visit their WEBSITE

Nation CMV Mom & Baby Organization

National CMV 

The National CMV Foundation

 

Congenital Cytomegalovirus, or CMV, is the most common viral infection, and the leading non-genetic cause of hearing loss, that infants are born with in the United States. Every pregnant woman is at risk of acquiring CMV. And only 9% of women know about it.

CMV is common, serious, and preventable.

https://www.nationalcmv.org/

Healthy Hearing Organization ear

Healthy Hearing.org

Healthy Hearing.org

Written by the American Academy of Pediatrics this site is a good resource for better understanding hearing screening and hearing loss for babies.

https://www.healthychildren.org/English/ages-stages/baby/Pages/Purpose-of-Newborn-Hearing-Screening.aspx

IDHP Square

IDHP

Illinois Department of Public Health

https://dph.illinois.gov/topics-services/life-stages-populations/newborn-screening/hearing.html

The Illinois Department of Public Health is a key resource for pediatric hearing loss.  With the assistance of local public health agencies, Illinois’ public health system forms a frontline defense against disease through preventive measures and education.

FHSR Squares For Website Organizations

IDHP

Child’s Voice School serves children with hearing loss from birth to eight years old. Their programs include pediatric audiology, early intervention, and a school program. The audiology program includes diagnostic testing, evaluation, and device support.Beyond hearing screenings and diagnostic testing, they offer long-term, family-centered care, Including hearing-device fitting and maintenance, early intervention services, speech and language therapy, baby and toddler groups, and audiological counseling for families.

EHDI 2021 Annual Report
This report is the source for 1.3.6 action plan

FHSR - A Resource for the DHH Community.

FHSR is dedicated to helping improve the lives of children with hearing loss. 

Please visit our home page to find out about our programming and services.  


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A Sound Investment in Our Children

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  • HOME
  • ABOUT US
    • BOARD OF DIRECTORS
    • ASSOCIATE BOARD
    • ADVISORY BOARD
    • HISTORY
    • PARTNERSHIPS
    • FINANCIALS
  • PARENT RESOURCES
    • NEXT STEPS AFTER A FAILED HEARING SCREENING
    • TECHNOLOGY
    • MUSIC CLASSES & INSTRUMENT SCHOLARSHIP PROGRAM
    • MUSIC THERAPY PROGRAM
  • AGES AND STAGES
    • BIRTH TO AGE 3
      • FACTS ABOUT HEARING LOSS & HEARING LEVELS
      • TYPES OF HEARING TESTS
      • AUDIOGRAM
      • EARLY INTERVENTION
      • MUSIC ENRICHMENT FOR BIRTH TO AGE 3
    • PRE-K TO 2ND GRADE
      • LANGUAGE DEVELOPMENT
      • SCHOOL CHOICE
    • GRADE AND MIDDLE SCHOOL
    • HIGH SCHOOL
  • PROGRAMMING
    • MUSIC PROGRAMMING
      • MUSIC TO MY EARS – MTME
        • MUSIC CLASSES & INSTRUMENT SCHOLARSHIP
        • EARLY CHILDHOOD MUSIC ENRICHMENT PROGRAMS (UP TO AGE 4)
        • INDIVIDUAL & GROUP INSTRUMENT CLASSES (AGE 4 -12)
        • MUSIC ENRICHMENT FOR BIRTH TO AGE 3
        • SCHOOL BASED MUSIC PROGRAMS
      • EARLY CHILDHOOD VIDEOS
      • MUSIC THERAPY
    • EDUCATIONAL PROGRAMMING
      • AGES AND STAGES
      • LITERACY
      • HART FAMILY EDUCATION COORDINATOR
    • CLINICAL & COMMUNITY OUTREACH
      • NEXT STEPS AFTER A FAILED NEWBORN HEARING SCREENING
      • FREE FAMILY EVENTS
      • DR. NANCY YOUNG, MD
      • LOANER HEARING AID PROGRAM
      • POLICY AND ADVOCACY
  • MUSIC TO MY EARS – MTME
    • MUSIC CLASSES & INSTRUMENT SCHOLARSHIP PROGRAM
    • EARLY CHILDHOOD MUSIC ENRICHMENT PROGRAMS (UP TO AGE 4)
    • INDIVIDUAL & GROUP INSTRUMENT CLASSES (AGE 4 -12)
    • SCHOOL BASED MUSIC PROGRAMS
    • MUSIC THERAPY
    • MUSIC ENRICHMENT VIDEOS
  • EVENTS
    • Cheers for Ears
  • BLOGS & NEWSLETTERS
    • FHSR BLOG
    • NEWSLETTERS
  • DONATE
  • CONTACT
Menu
  • HOME
  • ABOUT US
    • BOARD OF DIRECTORS
    • ASSOCIATE BOARD
    • ADVISORY BOARD
    • HISTORY
    • PARTNERSHIPS
    • FINANCIALS
  • PARENT RESOURCES
    • NEXT STEPS AFTER A FAILED HEARING SCREENING
    • TECHNOLOGY
    • MUSIC CLASSES & INSTRUMENT SCHOLARSHIP PROGRAM
    • MUSIC THERAPY PROGRAM
  • AGES AND STAGES
    • BIRTH TO AGE 3
      • FACTS ABOUT HEARING LOSS & HEARING LEVELS
      • TYPES OF HEARING TESTS
      • AUDIOGRAM
      • EARLY INTERVENTION
      • MUSIC ENRICHMENT FOR BIRTH TO AGE 3
    • PRE-K TO 2ND GRADE
      • LANGUAGE DEVELOPMENT
      • SCHOOL CHOICE
    • GRADE AND MIDDLE SCHOOL
    • HIGH SCHOOL
  • PROGRAMMING
    • MUSIC PROGRAMMING
      • MUSIC TO MY EARS – MTME
        • MUSIC CLASSES & INSTRUMENT SCHOLARSHIP
        • EARLY CHILDHOOD MUSIC ENRICHMENT PROGRAMS (UP TO AGE 4)
        • INDIVIDUAL & GROUP INSTRUMENT CLASSES (AGE 4 -12)
        • MUSIC ENRICHMENT FOR BIRTH TO AGE 3
        • SCHOOL BASED MUSIC PROGRAMS
      • EARLY CHILDHOOD VIDEOS
      • MUSIC THERAPY
    • EDUCATIONAL PROGRAMMING
      • AGES AND STAGES
      • LITERACY
      • HART FAMILY EDUCATION COORDINATOR
    • CLINICAL & COMMUNITY OUTREACH
      • NEXT STEPS AFTER A FAILED NEWBORN HEARING SCREENING
      • FREE FAMILY EVENTS
      • DR. NANCY YOUNG, MD
      • LOANER HEARING AID PROGRAM
      • POLICY AND ADVOCACY
  • MUSIC TO MY EARS – MTME
    • MUSIC CLASSES & INSTRUMENT SCHOLARSHIP PROGRAM
    • EARLY CHILDHOOD MUSIC ENRICHMENT PROGRAMS (UP TO AGE 4)
    • INDIVIDUAL & GROUP INSTRUMENT CLASSES (AGE 4 -12)
    • SCHOOL BASED MUSIC PROGRAMS
    • MUSIC THERAPY
    • MUSIC ENRICHMENT VIDEOS
  • EVENTS
    • Cheers for Ears
  • BLOGS & NEWSLETTERS
    • FHSR BLOG
    • NEWSLETTERS
  • DONATE
  • CONTACT

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